We wish to extend huge thanks and appreciation to 10 year old Sofia and her friend Bella for raising £110 from their car boot sale. All of this money will go towards the campaign for Jessica. Excellent work girls – truly inspirational!
Jessica is campaigning to raise funds to provide people like her with assistive technologies such as EyeGaze and iPads with special applications designed to aid communications.
Jessica is a young adult who was born with a rare neurological disorder called Angelman syndrome which causes developmental delay, lack of speech and seizures. It also causes walking and balance disorders affecting her co-ordination and cognitive functions.
Jessica’s mum has had to learn all of her facial expressions and gestures to understand how she is feeling; when she is in pain or hungry or just wants a hug. But it is hard for Jessica to communicate to others.
Jessica tried out the EyeGaze system and, in a short time, she grasped the concept of using her eyes to manipulate the system and understand cause and effect. Using games which are designed to help people communicate, Jessica was able to guide the machine with her eyes to make it “blow bubbles”, play music and draw pictures. For the first time in her life she had some control and was able to find another way to express herself.
Since we launched this campaign, we have raised enough money to provide Jessica with a solution using iPads and Assistive Augmentation Communication (AAC) Software.
But with your support we would like to raise more money so that we can help other people with Angelman syndrome.
The grant has been awarded to Patrick, who has been registered blind since 2009, and has been used to fund a Prodigi Duo “reading” device. This will provide Patrick with access to previously inaccessible materials such as job postings, research papers and specialist/reference books. This is the foundation he needs to seek employment, enabling him to rebuild his confidence, reconstruct his life and turn despair into hope!
Patrick was working as an award winning building services design consultant until he suddenly lost his sight. From that point, not only was he unable to work, but he also had to learn a new way of life. He has since re-acquired computer keyboard skills and uses available technology in the local library so that he can access the internet and use email. Now he has the Prodigi Duo, his goal is to seek employment so that he can continue his work as a consultant and also help other visually impaired people. Read the full story
Thanks to all of you who attended the launch on May 23rd 2015. It was a huge success and we have now put the Janki Saye Foundation on the map!
Thank you for your support to date, and thank you in advance for your continued support.
We are pleased to announce we are all go for this exciting event!
April 21st, 2015. We are pleased to announce that we have been entered onto the Charity Commission Register of Charities with the Registration Number 1161371.