These are the stories of the individuals that we have been able to help. Please be inspired and make a donation so that we can continue with this great work and change even more lives!
Daniel is 19 years old. He has cerebral palsy, epilepsy, global developmental delay and chromosomal disorder. He is wheelchair bound and totally dependent on his family and carers for all aspects his daily life.
Daniel has no verbal communication but understands what is being said to him. He communicates through smiling and by having people close to him interpreting his behaviours and levels of movement/agitation.
Currently Daniel has access to a children’s hospice where his Occupational Therapist (OT) is helping with his transition for when he has to leave at the age of 21. They trialled the EyeGaze system to see if it could support Daniel as a communication tool and allow for skills development as well as enabling him to play and socialise through games and activities.
Daniel immediately understood how to interact with EyeGaze and showed evident enjoyment, concentration and understanding of cause and effect. Based on this, his family arranged to loan the system for one month to see if Daniel could engage with the system at home over a longer period of time.
With the help of his sister who personalised the system for his needs, Daniel was able to develop and improve his skills and this has been a very positive process for the family as a whole. His OT observed him using EyeGaze in his home environment and noticed he was playing more complicated cause and effect games and could pick out words and pictures to relay his choices to his family. She felt that continued use of EyeGaze would allow Daniel have more choice in his day to day activities and would enable him to further develop his skills.
Daniel was awarded a grant to fund the EyeGaze system.
Charlie is 4 years old. He is severely autistic, he has global development delay, significant special educational needs and is non verbal.
Charlie needs constant care and supervision for all aspects of his daily life. He is easily distressed and finds it difficult to interact with those around him.
His educational psychologist noted that, on occasions, Charlie managed to use apps on his support worker’s iPad. She has now recommended that he have one of his own with special applications as that would help him develop attention skills and enable him to make choices and communicate his preferences.
Charlie was awarded a grant to fund an iPad.
Charlie’s father sent us this message: “Charlie loves his i pad, and takes it everywhere with him, the first picture his him with his auntie as his using a communication app I think on his ipad and showing his auntie what he has on there and what he can do with it, and he communicates well with people he shows the app to, but only a few close family members, and the second picture was of Charlie this morning very cheekily watching peter rabbit whilst nobody was looking he likes the music it on it, and then he goes and finds the animals on a animal sound app he has, and laughs a lot.
We are most grateful for this wonderful ipad it has been a life saver in a some tricky situations, and Charlie is a very very lucky boy,
And we are very very grateful to you and your charity”
Asemah has a rare condition called LOGIC syndrome which causes excessive growth tissue to develop in various areas including the larynx and eyes. This has resulted in breathing difficulties, speech impairment and severe visual impairment; she is registered blind.
Asemah wants to improve her quality of life and increase her independence. She loves to read and is currently doing a poetry workshop and also learning creative writhing.
She requires the Prodigi Connect (video magnifier and text to speech conversion) with a distance camera which will enable her to see objects around the house and on kitchen shelves, enabling her to become more independent.
Asemah was awarded a grant to help fund the Prodidgi Connect 12. Two others charities also provided grants.
Asemah sent us this message: “I require high colour contrast, magnification and speech output to be able to read and navigate devices due to my limited sight. Therefore I could not use any other video magnifier as they had no voice guidance. The Prodigi Connect 12 was the ideal solution for me with its 12″ display allowing for greater magnification, the larger variety of colour schemes for high contrast, voice guidance to navigate through the options and most importantly reading mode to allow me to listen to my work / books.
I am still getting used to this new piece of equipment but it has great potential and benefit. I am very excited to explore its other features. I love its versatility and how I can use it in multiple situations e.g whilst baking, in poetry workshops or just reading at home.
I am so very grateful to the Janki Saye Foundation for choosing to support me as I was really struggling to gather the funds for this very expensive assistive technology. Janki Saye Foundation are very kind, understanding and hardworking charity.
Thank you very much to all the team.”
Reisy is 5 years old. She has Global Developmental Delay, Dyspraxia and ADHD.
Due to her limited communication skills and uncertainty about how to respond, she presents difficult and challenging behaviour. It is felt that her frustration in not being able to express herself exacerbates the situation and results in tantrums.
She is at as special school and teachers have identified a language program called Makaton which uses signs and symbols and will help make Reisy’s social and educational experiences more enjoyable. It will also help her develop her vocabulary so that she can ultimately improve her speech and language skills.
Reisy was awarded a grant to fund the Makaton symbols program.
Jordan is 2 and a half years old and has a rare form of cancer (Childhood Central Nervous System Atypical Teratoid/Rhaboid Tumour). He will be in and out of hospital for the rest of his life.
This cancer has affected his ability to speak so the only way he can communicate with his family and hospital staff is using flash cards.
Jordan’s family wanted to give him the Grid 3 application to run on an iPad. The software can be personalised to his specific needs, enabling him to use his eyes or touch the screen to communicate with people around him.
Jordan was awarded a grant to fund the Grid 3 sofware (the iPad was donated by another charity).
Robyn is 18 years old. She has Mosaic duplication (chromosome duplication) and Spina Bifida. She is wheelchair bound and has no functional verbal communication.
At school she was given the use of an iPad with the Prologuo2go communication application. This enabled her to do her school work and it also supported her social interaction.
As she was about to leave school and transition into a day care facility, her mother and teachers were very concerned that, without the iPad, she will no longer be able to communicate effectively. This would impact her ability to become more independent.
Robyn was awarded a grant to fund the iPad and the Prologuo2go app.
Robyn’s mother wrote us a letter in which she says “I would like to take this opportunity to say thank you on behalf of my daughter and myself for the iPad that has enabled Robyn to have a voice.
It has given Robyn independence to communicate with others, for example simple things like asking for a drink or what she wants to eat. She enjoys showing new people her new voice.
We are hoping she will go from strength to strength and use it more everyday.
Kye is 9 years old. He is autistic, has learning disabilities, sight and hearing impairments, hyposensitivity disorder and asthma. He requires constant care, support and supervision.
The family is extremely isolated and only interact with others when absolutely necessary. Kye’s Occupational Therapist believed that an iPad with various apps would be beneficial to him as it would provide him with some independence and help develop his communication, fine motor and cognitive skills.
Kye was awarded a grant to fund an iPad.
His mother sent us this message: “Since Kye has had the iPad he has developed vastly. He is much more confident and is beginning to try new things (even within his local community). His learning and speech have improved with him communicating with Siri for answers, which was just merely a dream 12 months ago.
Whilst we have a way to go, I am not able to thank you and the charity enough, for giving Kye a whole new chapter in his life. It may be only an iPad to some, but the learning and interaction it has given Kye is absolutely amazing, if not life changing.
Thank you from the bottom of our hearts”
Ethan is 5 years old. He has global developmental delay and autistic spectrum disorder. He relies on an adult for all of his basic needs and, as he is still unable to express himself verbally, he communicates his needs by leading an adult by the hand.
He is at a special severe learning difficulties school where they have been encouraging him to communicate using an iPad with the Picture Exchange Communication System (PECS). They felt it would help Ethan’s development enormously if he were to have an iPad with PECS at home as it would help him communicate and interact with his family.
Ethan was awarded a grant to fund an iPad.
His mother sent us a message of thanks: “Thank you for the help your organisation gave us in getting Ethan an iPad.
Ethan has benefited immensely in having the iPad, we are currently trying to get Ethan used to PECs to support his communication and having the app on the iPad at home to replicate what he is doing at school is helping in Ethan’s understanding.
Ethan also suffers from anxiety in new environments or noisy places, before we were unable to attend social gatherings with Ethan due to this anxiety, with the iPad which also has his favourite learning apps and music he is now more at ease in social gatherings as he can use the iPad to distract himself from the situations around him until he feels confident enough to explore his surroundings.
The iPad has also helped Ethan’s skills in browsing and concentration on educational programs, he uses the Fisher Price children’s apps to learn numbers, letters and animals. He is also now able to listen to his favourite songs which calms him.
I look forward to the new skills that Ethan is learning from having the iPad . Thank you for changing our lives.”
David is 8 years old. He has Angelman Syndrome, epilepsy, hyperactivity and sleep disorder. He is completely non-verbal and, because he cannot communicate his needs, he becomes frustrated which leads to him engaging in harmful activities such as hitting himself on his legs.
His speech and language therapists have recommended the use of the Prologuo2go communication app to help David make himself understood and to give him a voice, both at home and in the community.
David was awarded a grant to fund the Prologuo2go app.
Kinjal is 15 years old. She has muscular dystrophy and severe scoliosis which means she is profoundly disabled, but intellectually unimpaired. She is wheelchair bound and has to sit in a reclined position for most of the day as the scoliosis compromises her breathing and swallowing.
Kinjal is totally dependent on her mother for all her physical day to day needs such as bathing, eating and drinking.
Kinjal was awarded a grant to fund high end technology – Grid Pad Eye communication aid with MyGaze Tracking camera which will enable help her control her wheelchair, access her computer and enable her to complete her homework without the aid of her mother, who has to hold her books.
Kinjal sent us a message of thanks:
“Hello, my name is Kinjal and I am writing to thank you for funding my eye gaze equipment.
I am a 15 year old girl with muscular dystrophy who needs an adult’s help for all my daily tasks due to my physical condition.
I am really thankful to you for funding my eye gaze, dragon speech and other necessary bits. It will help me with my writing, doing my homework at home and lots of other things without an adult’s help all the time. You have made me more independent and confident with this device. This will be more beneficial for me because it will allow me to do my work in a tilting position, which is a better position for me to stay in. This will also help my scoliosis problem and help save my back from getting worse.
Thank you once again for trusting and providing this equipment to me. I am extremely grateful for what you have done and I hope you continue to help other children like me in the future.”
Henry is 5 years old. He has autistic spectrum disorder and global developmental delay. He is unable to care for himself, needs help to cut up his food and requires a special needs pushchair when outside. He lives in his old world and gets very upset when his routine changes.
Henry was awarded a grant to fund an iPad with special applications which will help him to communicate and learn motor skills.
His mother wrote to thank us: “Henry and my family would like to say a huge thank you to the Janki Saye Foundation.
The summer holidays are a confusing time for Henry. Every day he forgets why he is not going to school. With the Social Stories Creator app we have been able to create a story with pictures to explain to Henry his new routine. PECS Phase III app has been instrumental in improving Henry’s communication skills. Often Henry is unable to find the words, but he is able to flick through the themed folders of images we created until showing us what he wants.
During the summer holidays it has also been extremely useful to give Henry the iPad when I need to occupy him while getting a house chore done, such as washing up or doing laundry. Henry especially enjoys using the Cbeebies app, Meet the Alphablocks, and All Aboard the Dinosaur Train.
I look forward to Henry’s school adding educational apps to aid Henry’s learning. Thank you again for this generous wonderful tool.”
Alfie is a young man who suffered a severe traumatic brain injury following an assault in 2013. He has been in a brain injury centre since June 2014 and has received intensive neuro-rehabilitation for extensive physical and communication difficulties.
He use a wheelchair, has severe dysarthria and his speech is mostly unintelligible. He used a low tech alphabet chart to communicate in the beginning, and was managing with that but it proved difficult for his communication partner to follow what he was saying. He was then given the loan of an iPad with the Grid Player app installed and he used this very successfully around the centre and also out in the community.
Alfie was awarded a grant to fund an iPad with the Grid Player app and a wheelchair mount for use at home once he has been discharged from the brain injury centre.
His Speech and Language Therapist (SLT), tells us “Alfie is getting on very well with his new iPad and is now finally able to clearly get his message across to any communication partner.
This is particularly important as he has now moved on from his inpatient rehabilitation to a residential home, and is hoping to soon move in with his partner and their baby boy, who was born in June.
Alfie is determined to continue working with the SLT to improve his speech clarity, but in the meantime he is very grateful to have the option to use his iPad to communicate all the important – and not so important – things he would like to say! Thank you very much for making this possible for him.”
Greg is a young adult who has visual impairment, learning difficulties, epilepsy and kidney failure. He is a wheelchair user and is non verbal making it difficult to communicate with the world around him.
Greg was awarded a grant to fund the Little Step By Step switch communicator which enables him to communicate with the people around him and helps to improve the quality of his life.
His mother writes “The Little Step By step switch purchased for Greg through the very generous technology grant from the Janki Saye Foundation has made a great difference to Greg’s daily life.
His old one was broken beyond repair and he could no longer record a message at his day services to bring home to us & we couldn’t record a message saying what he had been doing each evening and at the weekends for Greg to ‘tell’ at his day services….– he is great at understanding cause and effect and we use this a lot to help him communicate with his support workers and to help him experience and understand he can affect his environment.
Using the communicator gives him great pleasure and also teaches turn taking, which can again be used in other ways to help Greg engage with the world around him. Visual impairment can be a very lonely experience and very frustrating for Greg not to be able to communicate his needs and this switch goes a long way to keeping up his communication skills. It also gives us as parents a way to engage with Greg and to help us all to communicate better.”
Kyle is 11 years old. He has language impairment, multi sensory disorder, autistic traits and learning difficulties. These conditions make his life difficult and hinder both his educational and social growth.
Kyle was awarded a grant to fund an iPad so that he can use assistive applications recommended by an educational psychologist and his speech and language therapist.
His mother writes “We want to thank you all for providing Kyle with the ipad, he has been able to use it to do his school work on, practice with his speech and language and boosting his confidence….you have made such a positive impact on Kyle’s life and future development.
Before kyle struggled doing his work as he can barely write, spell or draw, but that has all changed with the amazing apps on the ipad, he actually looks forward to learning now. We are very grateful for all that your charity does.”
Ian lost the sight in one eye following an accident at the age of 15. The vision in his other eye has since deteriorated and he is now registered blind. His sight loss affects every part of his day to day life and impacts his independence.
He had been employed in a workshop for the blind but lost his job 4 years ago when it closed down. Following that his wife died having been ill with cancer .
Ian now feels ready to return to work; he desperately wants to find a job but lacks the necessary skills.
While volunteering at an RNIB resource centre, Ian has learnt how to use a computer with software called Zoomtext that will enlarge and read out what is on the screen for him. He also uses a keyboard which has bold, high contrast letters on it. Ian gives up many hours to volunteer at the centre; he does a fantastic job of supporting other people who have lost their sight and is an asset to the team.
Ian was awarded a grant to fund a computer with the Zoomtext magnification software so that he can develop IT skills at home and also have access to email, online shopping and social media. This will all help to provide him with a degree of independence and become less isolated.
Ian sent us a letter of thanks in which he says “I would really like to thank the Janki Saye Foundation very much indeed for the grant you have provided for me for my computer, it means the world to me I cannot thank you enough.
Your help is invaluable to me without this computer and software zoom text I would not be able to use a computer, in my quest to gain employment. There is nothing that I would like more than to make the people who have supported me and also invested a lot of time in me over the last 12 months very proud. I would especially like to thank Suzanne for all her hard work in making this happen for me…and also the rest of the team at Action for Blind People in Hanley Stoke on Trent
I would just like to say your foundation really does change people’s lives please keep up the fantastic work so that more people like me can benefit from your hard work once again thank you very much indeed.
All the best
David has Multiple Sclerosis and his functional ability to use his hands to use a keyboard on a laptop/computer has declined. This means he is unable to use his computer which he requires to retain his independence in dealing with financial affairs, emails and social media.
David was awarded a grant (in partnership with the MS Society) to fund the PCEyeGo system which allows him to access his computer using his eyes.
The PCEyeGo technology has enabled David to regain his independence.
Jasmine is a young adult with a number of complex conditions, including selective mutism, autism, dyspraxia and dyslexia and anxiety disorder.
The selective mutism means that she is unable to communicate with others outside of her family home, and within the home she only communicates with her mother (who is her voice) and her sister.
Her condition makes her extremely vulnerable when she is outside her home and, without her mum, she is unable to tell anyone if she is hurt or in pain.
Jasmine was awarded a grant to fund the Prologuo2go communications software for her iPad.
Her mother wrote to thank us and told us this would make a huge difference to Jasmine. She says “the Prologuo2go will open up her world a little to help her communicate with her teachers & family members. We are sure it will give Jasmine the confidence to communicate in a way she feels comfortable”.
Harry is 13 years old. He has autism, global developmental delay, epilepsy and various other conditions.
This means he struggles with communication as he is non-verbal with the mental capability of a small child.
Harry was awarded a grant to replace his old iPad so that he could continue to watch his DVDs, which is his main pleasure, and to communicate with his family using the Prologuo2go communications software.
His mother thanked us saying “you have made a young man VERY happy indeed”
You may already have heard about Jessica from our campaign news and video. She is a young adult who was born with Angelman syndrome, which causes developmental delay and lack of speech and also affects her co-ordination and cognitive functions.
We launched the campaign to raise enough money to provide Jessica with an EyeGaze machine which enables her to communicate and express herself using her eyes to control the cursor. With your support, we have raised £4,000 so far.
Having reassessed Jessica’s needs and capabilities, her mother decided that a solution using iPads and assistive communication software would go a long way to opening up Jessica’s world. So we awarded Jessica a grant of £2,000 to fund a sturdy iPad Pro with Prologuo2go for home use and an iPad mini with Go Talk Now, Pictello and Scene Speak which she can use when she is outside.
We will continue to run Jessica’s campaign to raise money for people like her who have Angelman syndrome.
“By having the Prodigi Duo 2 in 1 electronic magnifier it provides the foundation for seeking full employment and allows me as a visually impaired person to rebuild my confidence and reconstruct my life”.
Patrick is a professional building services design consultant engineer who worked on award winning projects including Imperial College Business School, Ealing Studios and the Madrid Law Courts. He was also very active in the community as a school governor and football coach.
In 2009 he suddenly lost his sight and became registered blind. He took ownership of his guide dog Rufus in 2013. He says that the suddenly loss of his sight left him devastated. And losing the ability to read led to further despair, anger and depression. He then became associated with the Digital Tuesday for Visually Impaired People (DTVIP) group at the local library where he was provided with the opportunity to turn despair into hope. He learnt to touch type and use computers and, after many years, he was again able to access email.
Patrick now volunteers with different R&D organizations in developing software and equipment for the visually impaired.
He tells us that the government provides An Access to Work grant to pay for practical support if you have a disability, health or mental health condition, but this grant is only available if you are already in employment, become self-employed or start a business.
As an unemployed visually impaired person, Patrick is not eligible for a government grant. This means that assistive technologies are off limits to him, creating a further barrier to seeking employment. He wants to re-join the ranks of the employed as a consultant but, as he goes to meetings and events, it is clear that he requires someone to accompany him to read documents or he has to have the papers transcribed to CD format which he then has to commit to memory in advance of the meeting.
Patrick was awarded a grant to fund a Prodigi Duo 2 in 1 (desktop and handheld) reading device which will enable him to access previously inaccessible materials such as job postings, research papers and specialist/reference books. The handheld device also stores documents which he can then take to meetings.
Patrick now has what he needs to achieve his goal of seeking employment so he can continue his work as a consultant and also help other visually impaired people.