A very special thank you to Zayan who donated £30 of his hard earned pocket money so that he can help to make a difference.
We are very touched by such a sweet, thoughtful and generous gesture from one so young!!
Daniel is running the London Marathon to help raise funds for George
Daniel Ralph’s training is coming along well, but he has a long way to go!!
This is Daniel’s first ever marathon and it is a tough challenge. He has agreed to raise a minimum of £3,000 for the Janki Saye Foundation and he really needs your support and encouragement to achieve his target.
Please sponsor Daniel and help him to raise the money needed to help George:
George is 11 years old. He has cerebral palsy, severe learning difficulties and epilepsy. He is wheelchair bound, unable to talk and relies on his mother for his basic everyday needs.
At his school, 3 days a week., George has access to an EyeGaze system with skills development software. With this system, he uses his eyes to control the activities. Staff have found that he really enjoys these sessions.
George’s family are very keen to for him to be able to practice these activities at home so that he can advance his learning and also use the EyeGaze system to communicate with them.
This technology costs £3,300.
Please sponsor Daniel and help him to raise the money needed to help George.
Daniel Ralph is running the London Marathon to raise funds for JSF
Daniel Ralph is braving the cold winter mornings to train for his first ever marathon in order to raise a minimum of £3,000 for the Janki Saye Foundation.
This is a tough challenge and Daniel will need all the help he can to reach his target, so please show your support and sponsor him today!
More grants awarded
We have recently awarded grants to Robyn (chromosome duplication and spina bifida), Ethan (autism and global developmental delay) and David (Angelman Syndrome).
Robyn is 18 years old. She has Mosaic duplication (chromosome duplication) and spina bifida. She is wheelchair bound and has no functional verbal communication. At school she was given the use of an iPad with the Prologuo2go communication application. This enabled her to do her school work and it also supported her social interaction. As she was about to leave school and transition into a day care facility, her mother and teachers were very concerned that, without the iPad, she will no longer be able to communicate effectively. This would impact her ability to become more independent. Robyn was awarded a grant of £600 to fund the iPad and the Prologuo2go app.
Ethan is 5 years old. He has global developmental delay and autistic spectrum disorder. He relies on an adult for all of his basic needs and, as he is still unable to express himself verbally, he communicates his needs by leading an adult by the hand. He is at a special severe learning difficulties school where they have been encouraging him to communicate using an iPad with the Picture Exchange Communication System (PECS). They feel it would help Ethan’s development enormously if he were to have an iPad with PECS at home as it would help him communicate and interact with his family. Ethan was awarded a grant of £420 to fund an iPad.
David is 8 years old. He has Angelman Syndrome, epilepsy, hyperactivity and sleep disorder. He is completely non-verbal and, because he cannot communicate his needs, he becomes frustrated which leads to him engaging in harmful activities such as hitting himself on his legs. His speech and language therapists have recommended the use of the Prologuo2go communication app to help David make himself understood and to give him a voice, both at home and in the community. David was awarded a grant of £200 to fund the Prologuo2go app.
Just So Funny – what a great night!
It was a great night of fun and laughter.
Huge thanks to comedians Arthur Smith, Tony Law, Mark Restuccia, Tom Ward, Ariane Sherine, Ross Smith and Elizabeth Guterbock who so generously gave up their time for this event.
Thanks also to the East Dulwich Tavern for all their help and support in hosting the evening.
And of course thanks to everyone who attended and also to those who made donations. And a special thank you to Debesh Datta for donating his entire raffle winnings back into the foundation.
The combined support and generosity of everyone involved helped to raise approximately over £1,500 (and counting…), which will enable us to provide life changing assistive technology to at least 2 individuals. So watch this space for updates.
Comedy Night – November 18th. Tickets selling out fast!
More grants awarded
We have recently awarded grants to Ian (visual impairment), Henry (autism and global development delay), Alfie (traumatic brain injury), Greg (visual impairment and learning difficulties) and Kinjal (muscular dystrophy and scolios). Read their stories…
But now our funds are depleted!
Please help us raise more funds so we can continue with our great work and transform more lives!!
Surbition High School raise £1,000!!
We are incredibly pleased and enormously honoured that Surbition High School – Pankhurst House chose the Janki Saye Foundation as one of their supported charities during this past academic year.
The pupils worked hard to raise awareness and funds – they baked cakes, held Raise and Give (RAG) activities, washed cars, wore mufti and held a two-night Fashion Show.
The total funds raised for us was a very impressive £1,000. Huge thanks to everyone involved!!!
Kinjal’s Story
Kinjal is 15 years old. She has muscular dystrophy and severe scoliosis which means she is profoundly disabled, but intellectually unimpaired.
Kinjal is wheelchair bound and has to sit in a reclined position for most of the day as the scoliosis compromises her breathing and swallowing.
She is totally dependent on her mother for all her physical day to day needs such as bathing, eating and drinking.
Kinjal’s occupational therapist has recommended the Grid Pad Eye communication aid with MyGaze Tracking camera which will enable help her control her wheelchair, access her computer and enable her to complete her homework without the aid of her mother, who has to hold her books.
This device will make a huge improvement to the quality of Kinjal’s life and will provide her with a degree of independence and opportunity to function to the optimum level of a young person.
The cost of this high end technology is £6,000 and the money raised by Team JSF Nightrider makes up half of this.
London Nightrider 2016 – Team JSF raise £3,000!
Huge congratulations and thanks to Team JSF Nightrider (Nadeem Samaha, Chris Wright, Debesh Datta, David Anderson, Luke McFarland and Ken Bryan) who completed this epic bike ride on the night of June 4th/5th.
It was a real test of endurance, cycling in the dark (and looking for signposts) while negotiating traffic and hills. And the team all participated with smiles on their faces!
Together they raised a spectacular £3,000 in sponsorship – not bad for a night’s work!
Thank you again boys – you are real heroes!
The money raised will make a huge difference and goes a long way to funding the assistive technology required by Kinjal who has muscular dystrophy. Read Kinjal’s story….