Janki Saye Foundation

Enabling solutions for people with disabilities

Daniel is running the London Marathon to help raise funds for George

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Daniel Ralph’s  training is coming along well, but he has a long way to go!!

This is Daniel’s first ever marathon and it is a tough challenge. He has agreed to raise a minimum of £3,000 for the Janki Saye Foundation and he really needs your support and encouragement to achieve his target.

Please sponsor Daniel and help him to raise the money needed to help George:

George is 11 years old. He has cerebral palsy, severe learning difficulties and epilepsy. He is wheelchair bound, unable to talk and relies on his mother for his basic everyday needs.

At his school, 3 days a week., George has access to an EyeGaze system with skills development software. With this system, he uses his eyes to control the activities. Staff have found that he really enjoys these sessions.

George’s family are very keen to for him to be able to practice these activities at home so that he can advance his learning and also use the EyeGaze system to  communicate with them.

This technology costs £3,300.

George2 George1

 

 

 

 

 

 

 

 

Please sponsor Daniel and help him to raise the money needed to help George.

 

 

 

More grants awarded

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We have recently awarded grants to Robyn (chromosome duplication and spina bifida), Ethan (autism and global developmental delay) and David (Angelman Syndrome).

Robyn is 18 years old. She has Mosaic duplication (chromosome duplication) and spina bifida. She is wheelchair bound and has no functional verbal communication. At school she was given the use of an iPad with the Prologuo2go communication application. This enabled her to do her school work and it also supported her social interaction.   As she was about to leave school and transition into a day care facility, her mother and teachers were very concerned that, without the iPad, she will no longer be able to communicate effectively. This would impact her ability to become more independent.   Robyn was awarded a grant of £600 to fund the iPad and the Prologuo2go app.

Ethan is 5 years old. He has global developmental delay and autistic spectrum disorder.   He relies on an adult for all of his basic needs and, as he is still unable to express himself verbally, he communicates his needs by leading an adult by the hand.  He is at a special severe learning difficulties school where they have been encouraging him to communicate using an iPad with the Picture Exchange Communication System (PECS). They feel it would help Ethan’s development enormously if he were to have an iPad with PECS at home as it would help him communicate and interact with his family. Ethan was awarded a grant of £420 to fund an iPad.

David is 8 years old. He has Angelman Syndrome, epilepsy, hyperactivity and sleep disorder. He is  completely non-verbal and, because he cannot communicate his needs, he becomes frustrated which leads to him engaging in harmful activities such as hitting himself on his legs. His speech and language therapists have recommended the use of the Prologuo2go communication app to help David make himself understood and to give him a voice, both at home and in the community. David was awarded a grant of £200 to fund the Prologuo2go app.

 

 

 

 

Just So Funny – what a great night!

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It was a great night of fun and laughter.

Huge thanks to comedians Arthur Smith, Tony Law, Mark Restuccia, Tom Ward, Ariane Sherine, Ross Smith and Elizabeth Guterbock who so generously gave up their time for this event.

Thanks also to the East Dulwich Tavern for all their help and support in hosting the evening.

And of course thanks to everyone who attended and also to those who made donations. And a special thank you to Debesh Datta for donating his entire raffle winnings back into the foundation.

The combined support and generosity of everyone involved helped to raise approximately over £1,500 (and counting…), which will enable us to provide life changing assistive technology to at least 2 individuals. So watch this space for updates.

 

 

 

More grants awarded

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We have recently awarded grants to Ian (visual impairment), Henry (autism and global development delay), Alfie (traumatic brain injury), Greg (visual impairment and learning difficulties) and Kinjal (muscular dystrophy and scolios).  Read their stories…

But now our funds are depleted!

Please help us raise more funds so we can continue with our great work and transform more lives!!

Surbition High School raise £1,000!!

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We are incredibly pleased and enormously honoured that Surbition High School – Pankhurst House chose the Janki Saye Foundation as one of their supported charities during this past academic year.

The pupils worked hard to raise awareness and funds – they baked cakes, held Raise and Give (RAG) activities, washed cars, wore mufti and held a two-night Fashion Show.

The total funds raised for us was a very impressive £1,000. Huge thanks to everyone involved!!!

 

London Nightrider 2016 – Team JSF raise £3,000!

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Huge congratulations and thanks to Team JSF Nightrider (Nadeem Samaha, Chris Wright, Debesh Datta, David Anderson, Luke McFarland and Ken Bryan) who completed this epic bike ride on the night of June 4th/5th.


 

It was a real test of endurance, cycling in the dark (and looking for signposts) while negotiating traffic and hills. And the team all participated with smiles on their faces!

Together they raised a spectacular £3,000 in sponsorship – not bad for a night’s work!

Thank you again boys – you are real heroes!

The money raised will make a huge difference and goes a long way to funding the assistive technology required by Kinjal who has muscular dystrophy. Read Kinjal’s story….

 

 

 

We have awarded another grant!!

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We have just awarded a grant to David who has MS. The grant goes towards funding the PCEyeGo to enable David to use his laptop again after losing the functional ability to use his hands and fingers to use the keyboard. This will enable David to regain his independence in dealing with his financial affairs and also engage in social media etc. More on this story later…